CHD Research
CHD research is drastically under funded in both the public and private sectors relative to the number of lives the disease affects. In the private sector, only 1% of every dollar received at the major private funder of cardiovascular research goes to any Pediatric cardiac research. Likewise in 2007, the National Institutes of Health's NHLBI (National Heart, Lung and Blood Institute) allocated less than 3% of every dollar invested in research to any Pediatric cardiovascular research.
CHD Research Goal
CHF advocates increasing both public and private funding of CHD research proportionate to the prevalence and impact of CHD
CHD Research Issues:
- Focus on diagnosis, treatments, and prevention
- Target for maximum impact on changing CHD patient population
- Focus beyond survival to long-term outcomes
- Prospective Studies
- Large scale, multi-center research
- Evidence-based medicine
CHD Research Strategies
- Lobby on federal level
- Increase patient and family research participation
- Raise national awareness of cost/impact of CHD research
Links to CHD Research
- Children’s Heart Foundation funded studies 1996 – present
- ClinicalTrials.gov
|
